Topeka shines light on World NF Awareness Day

Published: May. 17, 2019 at 6:21 PM CDT
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Topeka is joining communities across the nation in "shining a light" on a rare genetic condition.

Friday, May 17, is World NF Awareness Day. NF stand for neurofibromatosis, a genetic condition causing tumors on nerves throughout the body.

Topekan Steve Sodergran, who runs in honor of people fighting cancer and other challenging conditions through his Running4 initiative, lent his legs to the cause. He invited 13's Melissa Brunner for a Friday morning run, mapping out a route that spelled "End NF."

Melissa's nephew Owen is among the 1 in 3,000 people living with NF.

Friday night, the downtown Topeka arches, water tower and Cyrus Hotel, along with the Amelia Earhart bridge in Atchison, are among landmarks nationwide that will light up blue and green for NF awareness. Also in Kansas, the City Hall Fountain in Shawnee and

Lied Center in Lawrence will sport NF colors. Niagra Falls is among other notable locations that will glow blue and green.

To learn more about NF, visit


Gov. Laura Kelly proclaimed Friday as World NF Awareness Day in Kansas, while Mayor Michelle De La Isla signed a similar proclamation for the City of Topeka.

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