KS girl born with rare condition battles life-threatening virus, family asks for prayers

WICHITA, Kan. (KWCH) -- Gwen and Scott Hartley ask for prayers for their daughter Lola, fighting against a life-threatening virus at a Wichita hospital.

The 13-year-old suffers from microcephaly, a medical condition in which a child's brain doesn't fully develop and the child has an abnormally small head for his or her age.

The condition claimed the life of Lola's older sister, Claire, who died at the age of 17 in December 2018.

The Hartleys earlier this year lobbied for a bill that, in part, protects Kansans in possession of THC CBD oil for medical purposes.
In May, legislators passed the bill, known as "Claire and Lola's law."

On Sunday, the Hartley's say Lola became ill at home and began struggling to breathe.

"We were suctioning her constantly, and her oxygen requirements became too much for us to handle at home, so we took her to the ER at our local children's hospital," the family says in a post on its Facebook page, "The Hartley Hooligans," dedicated to chronicling the family's journey.

The Hartleys say doctors diagnosed Lola with Entreovirus and Rhinovirus.

"This is a wicked, evil virus that Lola is fighting very hard to beat," the family says.

On Friday, they say Lola is on day 6 of her fight against the virus in which days 3-7 are typically the most critical.

"We are supporting her with the very best of care, and our team of doctors, nurses, and respiratory therapists have been working tirelessly around the clock to help her recover from this horrific illness," the family says. "We are so grateful for their advice, support and love as we battle Lola’s very first hospitalization in her 13+ years of life."

As of Friday afternoon, the Hartleys say Lola is "holding her own," and they "are trying to keep hope alive."