6 years after a double lung transplant, a Holton girl is fighting for her life again

Published: Dec. 5, 2018 at 6:46 PM CST
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Six years after a then-12-year-old Madison Taliaferro received a double lung transplant, her family says she needs another.

Now 18, she waits in a St. Louis hospital, hoping a new donor is found.

Born with Cystic Fibrosis, Madison had a continued lung function decline until she she received that first transplant. She was doing well, even celebrating her

in 2015 at Indian Hills Elementary with over 100 friends and her first chance to thank the parents of Alex Lott, the boy whose lungs she received.

After six years of "a great quality of life," her family says she quickly went from celebrating homecoming to fighting for her life. Her lung function fell from 48 percent to 22.5 percent - and doctors aren't sure what caused the chronic rejection. Faced with the choice of trying to stay as comfortable as possible for as long as possible or trying to find a new donor even knowing the risks of a second double-lung transplant, Madison "decided she isn't done fighting and isn't done making memories."

"She wants to go to her senior prom and graduate with her classmates. She wants to get her first job and hate working it. She would love to be able to go to college and learn phlebotomy," her mom says.

The family has set up

for anyone who can help her family. There is also an account at Denison State Bank for anyone who would want to help her out. People who wish to donate that way can send checks to:

Denison State Bank

421 New York Ave

Holton, KS 66436

And, they need to be made out to The Benefit of Madison Taliaferro.

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